Why does it take sooo long to get HELP??!!
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Why does it take sooo long to get HELP??!!

So we have been considering taking Mason off of his ADHD medication.  He has been on Aderall since the beginning of the school year.  It has worked wonders for his concentration and does deffinatly. "slow" him down. (which for Mason is a huge deal. He has always been the type of kid that doesn't have enough Melitonen in his body to tell his brain to go to sleep.  So as a result always has WAY TOO MUCH ENERGY!!!  If you know what I mean)
 
We switched him from the pill form of Aderall to the patch that he puts on in the morning and takes off 8 hours later.  When we made the switch to the patch his anxiety went through the roof!!  As a result of all the anxiety, his violent outburst and aggression went crazy.  He was afraid of anything and everything.  He was combative and violent consistently.  This has thrown the entire house into madness.   We had to do something....so we stopped his patch and all meds for 2 weeks. 
 
We have seen a drastic decrease in his anxiety and aggression.  The problem is, now he is back at school after a week of spring break and we have gotten bad reports every day.  Granted, it has only been 2 days, but the reports are that he is really struggling.  This is obviously not what we intended at all.  Our goal was to help him to feel better and more grounded and decrease his anxiety.  Now all we have done is replace anxiety and aggression with disruptive noises and behaviors and a total lack of focus and control over his own body. 
 
This is a double edged sword.  What's worse, the side effects of the ADHD meds, or the total lack of control?  I don't know the answer to this question.  We are on the waiting list to get in and see that specialist at Seven Counties and are working with a behavior specialist but we are waiting and waiting.  Our wait this time to "get help" is over 2 1/2 months.  WHAT ARE WE SUPPOSED TO DO IN THE MEAN TIME!!  He is struggling, we are struggling as his parents, and all his siblings and friends are struggling to deal with his "difficulties". 
 
This entire system of getting HELP is so incredibly screwed up.  You wait and wait and wait and the child in the mean time gets more and more "lost" inside the insanity of their own mind.  Some one has to do something to change this.  Even the pediatricians, therapist and everyone else say the system is awful and the time you spend waiting does nothing to help anyone. 
 
 I am gonna make it one of my missions in life to change this some how.  even if that means just getting more info in the hands of the caregivers so that these amazing children don't get lost.  Something has to change.  I guess it'll have to pray about this one cause I just don't know what the answer is.  In the mean time all I can do is have meetings with teachers and principals and beg them to be patient with us and Mason because we are just trying to do what is best for him.  God bless the amazing teachers and aides that work with my kiddos.

1 Comment to Why does it take sooo long to get HELP??!!:

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